Living with Celiac Disease: Patient Tips

What is Celiac Disease?

Celiac disease is an autoimmune condition where eating gluten (found in wheat, rye, barley) damages the small intestine and prevents nutrient absorption.

Common Symptoms

  • Diarrhea, bloating, or stomach pain
  • Fatigue or weakness
  • Bone loss or fractures
  • Unexplained weight loss

Why It Matters

Celiac disease can lead to malnutrition, anemia, and bone loss if untreated. Following a gluten-free diet protects long-term health.

What You Can Do

  • Eat naturally gluten-free foods like rice, potatoes, fruits, vegetables, and meats.
  • Check labels carefully for hidden gluten in sauces, soups, and packaged foods.
  • Check with your pharmacist to make sure none of your medications have hidden gluten-containing fillers or binders.
  • Use separate toasters or cutting boards to avoid cross-contamination.
  • Work with a dietitian if possible.

When to Call Your Doctor

  • Blood in stool or severe anemia
  • Severe or persistent weight loss
  • Ongoing stomach pain despite gluten-free diet
  • Always ask your healthcare provider for specific advice on when to call to report symptoms, and when to seek urgent/emergency care.  

Examples of Small Goals

  • Replace regular bread with gluten-free bread.
  • Read ingredient labels on at least 3 products each shopping trip.
  • Join a support group (online or local) within the next month.

Remember: Small steps can make a big difference.

This handout is for educational purposes only and is not a substitute for professional medical advice. Always follow your healthcare provider’s instructions.

This content was created with the assistance of AI. Any AI-generated content was reviewed by a Nurse Practitioner.