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Living with Celiac Disease: Patient Tips

What is Celiac Disease?

Celiac disease is an autoimmune condition where eating gluten (found in wheat, rye, barley) damages the small intestine and prevents nutrient absorption.

Common Symptoms

  • Diarrhea, bloating, or stomach pain
  • Fatigue or weakness
  • Bone loss or fractures
  • Unexplained weight loss

Why It Matters

Celiac disease can lead to malnutrition, anemia, and bone loss if untreated. Following a gluten-free diet protects long-term health.

What You Can Do

  • Eat naturally gluten-free foods like rice, potatoes, fruits, vegetables, and meats.
  • Check labels carefully for hidden gluten in sauces, soups, and packaged foods.
  • Check with your pharmacist to make sure none of your medications have hidden gluten-containing fillers or binders.
  • Use separate toasters or cutting boards to avoid cross-contamination.
  • Work with a dietitian if possible.

When to Call Your Doctor

  • Blood in stool or severe anemia
  • Severe or persistent weight loss
  • Ongoing stomach pain despite gluten-free diet
  • Always ask your healthcare provider for specific advice on when to call to report symptoms, and when to seek urgent/emergency care.  

Examples of Small Goals

  • Replace regular bread with gluten-free bread.
  • Read ingredient labels on at least 3 products each shopping trip.
  • Join a support group (online or local) within the next month.

Remember: Small steps can make a big difference.


Medical Disclaimer

This resource is provided for educational and informational purposes only and is not intended to replace professional medical advice, diagnosis, or treatment. The information presented is general in nature and may not apply to every individual or health situation.

Individuals should consult their physician or another qualified healthcare professional for personalized medical advice, diagnosis, or treatment recommendations related to their specific health conditions.

Do not ignore or delay seeking professional medical advice because of information contained in this resource.

Call 911 if you are experiencing a medical emergency. 

This handout is for educational purposes only and is not a substitute for professional medical advice. Always follow your healthcare provider’s instructions.

This content was created with the assistance of AI. Any AI-generated content was reviewed by a Nurse Practitioner.