Working Together With Your Healthcare Provider to Manage IBD
A Conversation & Goal-Planning Guide for Adults with IBD
Why Partnership Matters
Inflammatory Bowel Disease (IBD) is a lifelong condition. The goal is not just to treat symptoms when they happen — but to:
- Prevent flares
- Reduce complications
- Maintain strength and independence
- Protect bone and muscle health
- Improve quality of life
The best outcomes happen when you and your healthcare provider work as a team.
A New Way of Thinking About IBD Care
Instead of asking:
- “How am I feeling today?”
- “How do I stop this flare?”
Try asking:
- “How can we prevent future flares?”
- “What is my risk for complications?”
- “Is my treatment controlling inflammation — not just symptoms?”
- “How does my age affect my care plan?”
Step 1: Current Symptom Check
Right now, my IBD feels like:
☐ In remission (no active symptoms)
☐ Mild symptoms
☐ Moderate symptoms
☐ Severe flare
Symptoms I am currently experiencing:
☐ Abdominal pain
☐ Diarrhea
☐ Blood in stool
☐ Urgency
☐ Fatigue
☐ Nausea
☐ Joint pain
☐ Skin changes
☐ Eye problems
☐ Weight loss
☐ No current symptoms
Other: ___________________________________
The symptom that concerns me most: ________________________________
__________________________________________________________
Step 2: My Current Treatment Plan
IBD Medications: _______________________________________________
___________________________________________________________
Other Medications (including supplements): _____________________________
___________________________________________________________
Have I noticed side effects? ________________________________________
Step 3: Short-Term Goals (Next 3 Months)
Medical Goals
☐ Reduce inflammation
☐ Improve bowel consistency
☐ Prevent flare
☐ Improve energy
☐ Stabilize weight
☐ Adjust medications safely
Other: ___________________________________
Personal Goals
☐ Increase activity level
☐ Travel comfortably
☐ Improve sleep
☐ Attend social events without worry
☐ Maintain independence
Other: ___________________________________
Step 4: Long-Term Goals (Next 12 Months)
Medical Goals
☐ Maintain remission
☐ Avoid hospitalization
☐ Protect bone health
☐ Monitor vitamin levels
☐ Reduce steroid use
Other: ___________________________________
Personal Goals
☐ Maintain strength and muscle
☐ Stay active with family
☐ Maintain healthy weight
☐ Prevent complications
Other: ___________________________________
Important Topics to Discuss With Your Provider (Age 65+)
- Bone density testing (especially if on steroids)
- Vitamin B12, Vitamin D, and iron levels
- Fall risk if experiencing weakness
- Infection risk from immune-suppressing medications
- Colon cancer screening schedule
- Vaccinations (flu, pneumonia, shingles)
Questions to Bring to Your Appointment
- Is my inflammation fully controlled?
- Are my medications still appropriate for my age?
- Do I need nutritional supplements?
- What signs mean I should call you?
- How often should I have lab tests?
Keeping Track Between Visits
- Monitor weight weekly, or as directed by your healthcare provider
- Track bowel habits if symptoms change
- Keep a medication list updated
- Write down new symptoms promptly
- Always ask your healthcare provider for specific advice on when to call to report symptoms, and when to seek urgent/emergency care.
- Stay hydrated and nourished
Key Takeaway
Managing IBD after 65 is about more than symptom relief.
It’s about maintaining strength, independence, and quality of life.
When you actively participate in your care plan, outcomes improve.
You are an essential member of your healthcare team.
⚠️ Medical Disclaimer
This resource is provided for educational and informational purposes only and is not intended to replace professional medical advice, diagnosis, or treatment. The information presented is general in nature and may not apply to every individual or health situation.
Individuals should consult their physician or other qualified healthcare professional for personalized medical advice, diagnosis, or treatment recommendations related to their specific health conditions and should not begin any new exercise program or change their diet or medications without consulting their healthcare professional.
Call 911 if you are experiencing a medical emergency.